Description
Dementia is an accessible introductory textbook that will help to improve the quality of care provided to people with dementia. It is aimed primarily at nursing, health and social care students who are seeking to understand dementia and to become rounded practitioners.
Through clear explanations, examples, case studies and activities, the book will help you to support and care for people with dementia whenever you meet them in your practice. You will learn:
- What dementia is and how its various forms are diagnosed and treated
- How to provide person-centred care and how to support family carers
- How to apply key principles in communicating with a person living with dementia
- About key legal, ethical and safeguarding issues including capacity, decision-making and risk
- How dementia and comorbid conditions interact and what challenges comorbid conditions present in the care of people with dementia
- Best practice in end-of-life care and support for people with dementia and their families
Written by a team of highly experienced practitioners and researchers in dementia care, this book will help you to improve your understanding of dementia and to provide high-quality care and support to people with dementia and their families and carers.
About the authors; Abbreviations
SECTION 1: Introduction
1. Introduction to the book
Amy Pepper
2. What is dementia?
Karen Harrison Dening
2.1 Introduction
2.2 Causes of dementia
2.3 Symptoms of dementia
2.4 Alzheimer's disease
2.5 Vascular dementia
2.6 Dementia with Lewy bodies
2.7 Frontotemporal dementia
2.8 Risk factors for dementia
3. Person-centred care and dementia
Amy Pepper
3.1 Person-centred care and dementia
3.2 Criticisms of the model
3.3 So what is person-centred care?
3.4 The importance of knowing the person
3.5 Positive person work and malignant social psychology
3.6 From person-centred to relationship-centred: evolving models of care
SECTION 2: The dementia care pathway
4. Diagnosis of dementia
Karen Harrison Dening
4.1 Introduction
4.2 Ruling out conditions that can mimic dementia
4.3 Mild cognitive impairment
4.4 Why diagnose dementia?
4.5 What does an assessment for dementia involve?
4.6 Giving a diagnosis of dementia
4.7 Prognosis of dementia
5. Medications used in dementia and their management
Karen Harrison Dening
5.1 Introduction
5.2 Treatment of the cognitive symptoms of dementia
5.3 Using AChEIs in clinical practice
5.4 Risks and benefits
5.5 Treatment of the non-cognitive symptoms of dementia
5.6 Treatment of other medical conditions that occur alongside dementia
6. Post-diagnostic support for people with dementia and their carers
Amy Pepper
6.1 Introduction
6.2 What does good post-diagnostic support look like?
6.3 Understanding and managing dementia
6.4 Psychological and emotional wellbeing
6.5 Practical support
6.6 Planning for the future
7. Assessment for care and support
Amy Pepper
7.1 Social care
7.2 The Care Act and the role of the local authority
7.3 The assessment process
7.4 The eligibility criteria
7.5 The financial assessment
7.6 Support for 'self-funders'
7.7 The carer's assessment
7.8 Types of care
7.9 NHS continuing healthcare
7.10 The experience of navigating the care and support system
7.11 Differences in social care in other areas of the UK
8. End-of-life care and dementia
Emma Wolverson
8.1 Introduction
8.2 The importance of early conversations about dying
8.3 Recognising end-of-life signs
8.4 Best practice in end-of-life care for people with dementia and their families
8.5 Caring for the person in the final days
8.6 Bereavement support
SECTION 3: Common issues in dementia care
9. Communication and dementia
Amy Pepper
9.1 Introduction
9.2 Communication and the brain
9.3 Verbal and non-verbal communication
9.4 Difficulties with communication in dementia
9.5 Person-centred care and communication
9.6 Things to think about when we are communicating with someone with dementia
9.7 The VERA framework
9.8 Communication and family carers
10. Capacity and decision-making in dementia
Karen Harrison Dening
10.1 Introduction
10.2 Decision-making
10.3 Decision-making capacity
10.4 What we mean by the terms capacity and competency
10.5 Mental Capacity Act 2005
10.6 Fluctuations in capacity
10.7 Best interests decisions
10.8 Shared decision-making
10.9 Lasting powers of attorney
10.10 Deputyship
11. Risk and dementia
Amy Pepper
11.1 Introduction
11.2 What is risk?
11.3 Risks in dementia
11.4 Risk enablement
11.5 A risk assessment and management framework
11.6 Risk management
11.7 Safeguarding
12. Distress in dementia
Emma Wolverson
12.1 Introduction
12.2 What do we mean by distress?
12.3 Distressed behaviours
12.4 The language used to talk about distressed behaviours
12.5 What do we mean by unmet needs?
12.6 What causes distress in people with dementia?
12.7 Assessment
12.8 Non-pharmacological approaches
12.9 The impact of distress on staff
13. Delirium and dementia
Karen Harrison Dening
13.1 Introduction
13.2 What is delirium?
13.3 Types of delirium
13.4 Supporting people with delirium and dementia
13.5 Delirium and dementia
13.6 How do we diagnose delirium?
14. Dementia and other health conditions
Karen Harrison Dening
14.1 Introduction
14.2 What do we mean by comorbidity and multimorbidity?
14.3 Comorbidities and dementia
14.4 Diagnostic overshadowing
14.5 Frailty
14.6 Management of comorbidities in dementia
14.7 Cancer
14.8 Pain
14.9 Sensory impairments
14.10 Mental health and dementia
14.11 Depression and anxiety
15. Supporting family carers
Tia Cheung-Cook
15.1 Introduction: families and dementia
15.2 Carers
15.3 What types of support do family carers give?
15.4 The impact of caring for someone with dementia
15.5 Supporting carers
16. Ethical issues in dementia care
Amy Pepper
16.1 Introduction
16.2 What do we mean by ethics and ethical practice?
16.3 Ethical frameworks
16.4 Therapeutic lying
16.5 The use of assistive technology
16.6 Sexuality and dementia
17. Dementia policy and guidance
Karen Harrison Dening
17.1 Introduction
17.2 Historical roots to present policy
17.3 The drive for reducing the risk of a person developing dementia
17.4 Dementia care policy and guidance – a brief history
17.5 Dementia – the 'well' pathway
17.6 Dementia policy in the future
18. Research and people with dementia
Emma Wolverson
18.1 Introduction
18.2 The importance of healthcare research
18.3 The research landscape in dementia
18.4 Priorities for dementia research
18.5 Why does research matter to people with dementia?
18.6 The rold of staff in supporting research in dementia
18.7 Where to signpost people to
18.8 Getting involved in research
19. Future challenges in dementia care
Madeleine Walpert
19.1 Introduction
19.2 The rising prevalence of dementia
19.3 Disease-modifying treatments
19.4 Future of diagnosis
19.5 Inequalities
19.6 Technology and digital health advancements
19.7 Changes in healthcare delivery and models
Index
Clearly presented and easy to understand
‘This book is a must for anyone working in health or social care, who needs to understand people living with dementia and their families, and for people caring for their loved ones.
It is well laid-out in easy to understand language, with highlighted sections allowing the reader to dip into whichever subject they need. It covers matters such as diagnosis, how to best care for and understand those with dementia, along with key legal and safeguarding advice and so much more. Highly recommended!' Amazon reviewer
I feel it is excellent, very accessible, approachable in style, promoting a positive person-centred approach while being extremely useful (for nurses, student nurses and allied health professionals) on a practical basis.
A senior lecturer, Birmingham City University
